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The Deutsche Huntington-Hilfe e.V. (DHH) is a self-help organization and patient representation established in 1970, dedicated to supporting people with Huntington's disease and their relatives. Based in Duisburg and with regional associations across the country, the DHH serves as a central point of contact for all those affected by this rare and hereditary condition.
The main mission of the DHH is to provide people with Huntington's disease and their families with unbureaucratic self-help assistance. The association sees itself as a community where those affected and their relatives can support each other with advice and action. The values of the DHH are based on solidarity, empathy, and commitment to research and education about Huntington's disease.
The DHH offers various ways to get involved and support. Whether as a member, through volunteer engagement, as a sponsor, or through a donation – every support helps strengthen the community of those affected. The association publishes the "Huntington Courier" quarterly, a club magazine that contains current information from research and about the association's work.
The Deutsche Huntington-Hilfe e.V. is a vibrant example of how solidarity, commitment, and the pursuit of common goals can improve the lives of people with rare diseases. Through its comprehensive offerings and initiatives, the DHH makes a significant contribution to support and hope for the affected community.