Employer profile
Deutsche HuntingtonHilfe eV
Duisburg, DEImpact-drivenAssociationHealthcareSocial Services
Impact3Sustainability Goals
LocationDuisburg
About us
Deutsche HuntingtonHilfe eV is a non-profit patient advocacy and self-help organization in Germany. Established in 1970, it supports individuals and families affected by Huntington's Disease. The organization provides comprehensive advice on social and everyday issues and maintains a nationwide network of 40 regional self-help groups and six state associations. It is also actively involved in research, facilitating study participation, and offers direct support for psychological crises and medical questions. Its mission is to ensure affected individuals have access to information, support, and a sense of community.
Connect
Sustainability Goals
Good Health & Well-Being
Comprehensive Support for Individuals with Huntington's Disease
The organization provides competent advice, psychosocial support, and access to specialized services for affected individuals and their families to improve their quality of life.
Advancing Research and Knowledge on Huntington's
DHH disseminates information on current studies and research opportunities to advance the treatment and understanding of this rare neurological disorder.
Reduced Inequalities
Reducing Inequalities for Rare Disease Patients
The organization strives to ensure equal access to information, social support, and financial aid for individuals with Huntington's Disease, addressing their unique disadvantages.
Partnerships for the Goals
Strengthening National and International Huntington Networks
The organization actively networks with specialized Huntington centers and international associations to pool knowledge and resources, amplifying the impact of its support.
FAQs
Q1What is the core mission of Deutsche HuntingtonHilfe eV?
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The core mission of Deutsche HuntingtonHilfe eV is to support individuals and families affected by Huntington's Disease in Germany. It ensures that affected individuals receive necessary information, access to support services, and a sense of community.
Q2How is Deutsche HuntingtonHilfe eV organized nationwide?
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The organization maintains a robust support network comprising 40 regional self-help groups and 60 contact persons across six state associations (Landesverbände) nationwide. This network offers comprehensive support and advice.
Q3How long has Deutsche HuntingtonHilfe eV been active?
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Deutsche HuntingtonHilfe eV was established in 1970 and thus has over 50 years of experience in supporting individuals and families affected by Huntington's Disease in Germany.
Q4What role does Deutsche HuntingtonHilfe eV play in research?
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The organization is actively involved in research, offering overviews of studies, opportunities for study participation, and sharing updates via HDBuzz. It also networks with specialized Huntington centers.
Q5What direct support services does Deutsche HuntingtonHilfe eV offer?
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It offers competent advice on social and everyday issues, as well as direct support for urgent psychological crises and medical questions through dedicated specialists. Tele-support and assistance in financial need are also available.
Q6Which UN Sustainable Development Goals (SDGs) does Deutsche HuntingtonHilfe eV support?
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The organization primarily supports SDG 3 (Good Health and Well-being), secondarily SDG 10 (Reduced Inequalities), and tertiarily SDG 17 (Partnerships for the Goals).
