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The Klinisches Krebsregister Niedersachsen (KKN) is a public law institution under the sponsorship of the state of Niedersachsen, founded on December 1, 2017, and under the technical supervision of the NiedersĂ€chsischen Ministeriums fĂŒr Soziales, Arbeit, Gesundheit und Gleichstellung.[3][1] As one of 15 clinical cancer registries nationwide in accordance with § 65c SGB V, the KKN fulfills a clearly defined legal mandate: the complete, comprehensive collection of data on cancer diagnoses, treatment courses, follow-up care, relapses, and deaths â both in outpatient and inpatient care.[1][2][4]
The KKN receives reports on cancer cases, evaluates them, and makes the data available to reporters, research institutions, and other institutions. The goal is the in Germany through valid statements about the occurrence, treatment, and course of tumor diseases.[1][2][4] Of particular note is the review of in facilities, which makes a significant contribution to quality assurance.[2]
The data collection is completely digital and paperless via a user-friendly, web-based reporter portal. Doctors and facilities can submit data manually in forms or in a structured manner via the oBDS interface â without installations or duplicate entries. A central data acceptance point ensures close cooperation with the Epidemiologischen Krebsregister Niedersachsen (EKN), so that a single report serves both registries.[5][4] Advantages include timely evaluations, rapid feedback of data to reporters, and regional support with minimal bureaucratic effort.[4]
Together with EKN and the Klinischen Landesauswertungsstelle (KLast), the KKN publishes the annual report "Krebs in Niedersachsen", which summarizes epidemiological data, evaluations, and current projects.[6] In this way, insights are "brought to speak" in order to optimize therapy results â as Managing Director Tobias Hartz emphasizes.[4][5]
The main mission of the KKN is: To strengthen oncological care in Niedersachsen and nationwide by using high-quality data to advance quality assurance, research, and health planning.[1][2] As an advocate for digitization, the KKN is committed to efficient processes that optimally utilize the complexity of sensitive cancer data â a crucial factor in oncology digitization.[1][5]
Data protection is at the center of the values: As the guardian of highly sensitive, personal data, the KKN regularly reviews organizational and technical measures according to the current state of the art.[1] High data quality is essential across all target groups â from physicians to researchers to care facilities â and ensures valid, precise insights.[4] The KKN positions itself as the best point of contact for cancer care data in Germany and promotes its scientific use.[1][2]
Although explicit sustainability goals are not described in detail, the KKN contributes to sustainability through digital, resource-saving operation: Paperless processes, central data points, and efficient IT solutions (e.g. cooperations such as IT-Choice and GTDS) minimize effort and environmental impact.[5][4] In the long term, comprehensive registration aims at preventive measures and improved care, which promotes social sustainability in the fight against cancer â in close coordination with historical predecessors such as the EKN since 2000.[3]
The KKN combines tradition with innovation: Emerging from the epidemiological structure of Niedersachsen, it is now driving quality assurance and invites to web seminars to train pathologists and documentarians.[10] With these structures, the entire cancer care system benefits: Patients receive guideline-compliant treatments, physicians data-based optimizations, and research well-founded foundations.[2][4]
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