The NCL-Stiftung is committed to a future without childhood dementia. It promotes research, education, and international cooperation to develop new therapeutic approaches. Dedicated volunteers support the mission to raise awareness for NCL and to collect donations.
The NCL-Stiftung, founded in 2002, is dedicated to the mission of creating a future without childhood dementia, also known as Neuronal Ceroid Lipofuscinosis (NCL). This rare and incurable metabolic disease affects approximately 70,000 children worldwide, including around 700 in Germany, and leads to severe symptoms such as dementia, vision loss, epilepsy, and motor decline, ultimately resulting in early death[2][3].
Since its founding, the NCL-Stiftung has made significant progress in research and awareness-raising. Thanks to new research approaches and targeted national and international research funding, there are now new hopes for previously lacking therapeutic and healing approaches for NCL. The foundation holds the DZI donation seal, underscoring its credibility and transparency[2][3].
The work of the NCL-Stiftung is complemented by volunteer supporters and helpers who are deeply committed to the cause. Examples include the remarkable fundraising efforts of Jan Hähnlein, who has raised significant amounts for the foundation through athletic challenges and world record attempts[4].
The NCL-Stiftung remains optimistic that through its efforts and the support of many, a future without childhood dementia can become possible.
