Employer profile
Bundesverband Herzkranke Kinder e.V.
Aachen, DEImpact-drivenAssociationHealthcareSocial Services
Impact2Sustainability Goals
LocationAachen
About Bundesverband Herzkranke Kinder e.V.
Bundesverband Herzkranke Kinder e.V. (bvhk.de) has been a central point of contact for individuals with congenital heart defects and their families in Germany for over 30 years. The organization provides a strong community, a helpful network, and comprehensive information and counseling services, including legal advice. bvhk.de actively advocates in health policy and with medical institutions to support small hearts. With initiatives like the "Mut-mach-Pakete" and innovative telepresence avatars, bvhk.de helps children prepare for and process surgeries. Approximately 4,500 children undergo open-heart surgery annually in Germany, and bvhk.de's work significantly contributes to over 90% of them reaching adulthood. Based in Aachen, the organization promotes good health and well-being, as well as reduced inequalities.
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Sustainability Goals
Good Health & Well-Being
Comprehensive support for children with heart disease
The bvhk.de offers a network, counseling, and materials to affected individuals and families, improving quality of life for those with congenital heart defects and easing surgical procedures.
Access to vital health information
The organization provides comprehensive information on living with a heart defect, a directory for contacts, and a media library for surgical preparation.
Reduced Inequalities
Advocating for equitable healthcare access
The bvhk.de advocates in health policy and at local clinics for the needs of children with heart defects and their families, promoting equal opportunities in accessing specialized care.
Legal advice and support for families
The organization provides families with children with heart conditions access to counseling centers and legal advice to help them navigate complex challenges.
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FAQs
Q1What is bvhk.de's mission?
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For over 30 years, Bundesverband Herzkranke Kinder e.V. (bvhk.de) has been dedicated to supporting individuals with congenital heart defects and their families. Its mission includes building a strong community, providing a helpful network, and advocating in health policy and with medical institutions.
Q2What services does bvhk.de offer?
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bvhk.de provides comprehensive information on living with a heart defect, a directory for contact persons, access to counseling centers including legal advice, and a media library with resources like films for surgical preparation and telepresence avatars. They also organize events, seminars, and camps.
Q3What key initiatives does bvhk.de pursue?
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A central initiative is the "Mut-mach-Pakete" (Courage-building packages) featuring mascots Erwin and Rosi, designed to help children prepare for and process heart surgery. Additionally, bvhk.de integrates innovative technology through telepresence avatar projects to expand support.
Q4What is the impact of bvhk.de's work?
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The organization supports families of approximately 1 in 100 children born with a heart defect in Germany. It contributes to over 90% of these children reaching adulthood thanks to medical advancements, by providing community and vital information.
Q5Which UN Sustainable Development Goals does bvhk.de support?
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bvhk.de primarily contributes to SDG 3 (Good Health and Well-being) by improving the quality of life for individuals with heart defects. Secondarily, the organization supports SDG 10 (Reduced Inequalities) through its comprehensive counseling and support services.
